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Sweet 16! Hard to believe I have been doing this for 16 years now. It seems like yesterday that I was doing my first walk between Ingersoll and London in the freezing cold in early April 2004. For me, though, the effort to walk 33 km each year pales in comparison to the effort required by boys with the disease to walk a tiny fraction of that distance. And as a Duchenne Dad, it is the least I can do. My son Eric, pictured above, will soon turn 19. As you can tell from the picture, he has a great sense of humour about DMD. He will be attending Carleton University this coming September, starting his journey toward a Bachelor of Science degree, majoring in Biology, that he hopes will lead to a career in medical research. As Eric says of his future, "I will find a cure, or die trying!". With his sense of humour, intelligence, perseverence, and optimism, I have no doubt it will be the former. Not only does he plan to eventually lead or contribute to the advance of research as a scientist, he also continues to contribute as a trial subject. He has been a participant in clinical trials off and on for almost eight years and recently started a new early-stage trial for a second-generation exon-skipping treatment. Eric is still walking, swimming three times a week, stretching and exercising, likely due in part to the first trial drug he was able to take. He understands as well as anybody the importance of research, and that is why our family continues to support Jesse's Journey and its mandate to raise funds for research.
We know a cure is not far off. But a cure requires research, and research requires funding...a lot of funding. Please give generously so that Eric and boys (men!) like him can continue to participate in clinical trials that will hopefully definitely one day result in a cure.
Thank you for your support!
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