In Support of Jesse's Journey

Friday, May 29, 2020

In honour of Isaac’s 7th birthday, his mother, Meghan, will be joining her local running group, the Acton Runners, to participate in a 24-hour run. She will be running 10 km every 4 hours until she reaches 70 km.

Isaac's older brothers Luke and Peter, will also be joining Meghan by running 2.5 km every 4 hours.

Interested runners are invited to participate in the run by running on Saturday, May 29, 2020. If you are feeling adventurous, consider trying the 24-hour run, the Acton runners are running 2.5 km, 5 km, or 10 km every 4 hours. If that doesn't sound like it is for you, please consider going out and running 7 km in honour of Isaac's 7th Birthday.

Whatever way you choose to run, please make sure to follow physical distancing rules. 

While it feels like our whole world is on pause right now Isaac's disease Duchenne Muscular Dystrophy is not, and researchers are still going to their labs to work to find treatments and a cure for Duchenne. Please help us support what we feel is essential work. 


The registration fee is $10 and all funds raised will go to support the most promising research towards improving the lives of those affect by Duchenne muscular dystrophy. All registered runners will receive in the mail a unique handmade Isacc's Birthday Trek medallion to commemorate their participation in the virtual run.

About Isaac:

We received Isaac's diagnosis of Duchenne muscular dystrophy in September of 2016 when Isaac was three years old. Isaac's diagnosis has impacted our entire family, his older brothers Luke and Peter and his younger sister Evelyn Anne. Duchenne primarily affects the muscles, but its impact is felt in more than just the loss of mobility. Isaac is now a busy grade one student and participating in a clinical trial out of the Children’s Hospital of London with Dr. Craig Campbell, which has received funding support from Jesse's Journey.

We are all excited to host Isaac's Trek for Treats again this year and are hopeful that by taking action and raising money for Jesse's Journey, we will help to reach a cure for Duchenne. This year has been especially exciting as we have branched out thanks to the amazing Acton Running community. In June, we had runners participate in the Cobourg to Niagara Ragnar, they raised over $5,000 for Isaac’s Trek. On September 7, World Duchenne Day Isaac’s mom Meg will be running the inaugural Trail Fix Race. We will finish off our fundraising year with Meg running the Badass Trail Run at the Batawa Ski Hill. 

Whether you have supported us by sponsoring one of our runners, running yourself or registering your children to run Isaac’s Trek, thank you for joining us in celebrating Isaac and for supporting our family's journey with Duchenne muscular dystrophy.