Monday, September 7, 2020

The Walk to Defeat Duchenne unites families from coast to coast to raise awareness and funds for Duchenne muscular dystrophy.

In 1995 John Davidson pushed his son, Jesse, across Ontario. This foundational feat launched Canada’s largest movement to fund research and support families living with Duchenne. This year, we invite you to join us as the Walk celebrates the 25th anniversary of Jesse’s Journey.

Due to COVID-19, the Walk to Defeat Duchenne has gone virtual and will now take place on World Duchenne Awareness Day, Monday, September 7, 2020 – this means you have more time to grow your team and raise vital funds!

While this is an uncertain time for everyone, the fight to defeat the most common fatal disease diagnosed in childhood, Duchenne muscular dystrophy, does not stop. We hope you will refocus your efforts online - by encouraging your supporters to donate towards your Walk and sharing your participation on social media.

What: Virtual Walk to Defeat Duchenne 

When: Monday, September 7, 2020 (World Duchenne Awareness Day)

Where: Anywhere your choose!

You choose where you walk – your neighbourhood, a local park, or the treadmill. Wherever you choose, please ensure you are keeping safe and abiding by the COVID-19 protocols as dictated by your province or territory (see updated information here).

Distance: Complete the Founder's Challenge or choose your own

Complete the Founder’s Challenge leading up to or on Monday, September 7, 2020, by walking 33 KM – the daily trek of John and Jesse Davidson during their 1995 walk across Ontario or, choose to walk, run or roll any distance on Monday, September 7, 2020.

Registration: Adults (18+) = $15 | Kids/Youth (under 17*) = Free (but fundraising is always encouraged!)

Did you already register for the Walk before it went virtual? Awesome - you don't have to worry about re-registering, you're all set to participate and help fundraise.

Haven't registered yet and looking to participate in the virtual Walk to Defeat Duchenne? Register as an individual or create/join a team - click the buttons above to get started.

Your registration fee and fundraising efforts will provide critical funds towards finding treatments and a cure for Duchenne muscular dystrophy, education for families living with this fatal disease, and advocacy efforts to bring therapies to children and young men living with Duchenne across Canada. 

Register before Monday, August 24 and receive a special 2020 Walk to Defeat Duchenne t-shirt delivered to your door.

Not sure of which t-shirt size to order? See the sizing charts below.

Please note, registration fees are non-refundable and do not qualify for a tax receipt. 

Early Bird Contest: We have extended the contest - register before Friday, August 7, 2020, and be entered to WIN a $100 Visa Gift Card. (if you registered in the winter/spring – don’t worry, your name will also be added to the draw).

Need help with your online registration and fundraising? Click here to download our Walk toolkit. 

What does "going virtual" mean? Click here to read our virtual 2020 Walk guidelines. 

Fundraising Success:

We're here to help you achieve fundraising success! Once registered online, you'll have access to your participant fundraising centre that includes tools track your progress and support to reach out to potential donors. 

Want to raise funds in person? We like it! Go old school and ask friends and family to support in person. Click here to download, print, complete, and mail your offline Pledge Form

About Jesse's Journey

Jesse's Journey is Canada's leading charity in the fight to defeat Duchenne muscular dystrophy – the most common fatal genetic disease diagnosed in childhood. Affecting approximately 1 in every 5,000 boys in Canada, Duchenne gradually weakens the body’s muscles and ultimately leads to the deterioration of vital organs, such as the heart and lungs. Jesse's Journey supports patients, families, and caregivers living with Duchenne through educational programs and resources, provides a collective voice to advocate for timely access to affordable treatments in Canada, and funds the most promising research to improve the lives of boys and young men.

Impact of Your Gift

Thanks to the generous donations by Walk participants and supporters, Jesse's Journey has been able to invest more than $13.1 million into research. As a result of our grants to research over the course of 25 years, there have been major advancements in clinical discoveries, significant improvements in the quality of life for those living with Duchenne, and children with Duchenne are living longer lives. Click here to learn more about the impact of each gift. 

Please do not hesitate to contact us should you have any questions or concerns:

Matt Gennaro

Coordinator, Administration and Community Engagement